A year old Vedika Saurabh Shinde, suffering from a rare genetic disease, breathed her last at a hospital in Pune on Sunday evening. To save his life, prayers were raised from all over the world, the world’s most expensive injection was also given. However, destiny had other plans. The issue of waiving import duty for Vedika’s medicine had also raised in the Lok Sabha. Last month, when the injection came for her from America and she was given it, it was thought that in a month or two months she would start playing like a normal child. But, a sad news on Sunday evening brought tears to the eyes of those who prayed for him across the world.
Vedika Shinde Latest News.
Vedika Shinde, a resident of Pimpri-Chinchwad, adjoining Pune, Maharashtra, breathed her last on Sunday (August 1). Vedika was suffering from a rare disease called Genetic Spinal Muscular Atrophy. Innocent Vedika was given an injection of Rs 16 crore by collecting money through crowd funding. Despite this, Vedika could not be saved.
vedika shinde disease.
One-year-old Vedika was battling a rare disease called spinal muscular atrophy. It is a genetic disease, due to which prayers and support were raised from all over the world to protect it. But, on Sunday evening, he succumbed to his injuries at the Deenanath Mangeshkar Hospital in Pune.
Innocent’s central nervous system had failed due to illness and she could not control her muscles. Last month itself, he was given the injection Zolgensma, for which Rs 16 crore was raised through various crowdfunding platforms. The news of the death of a 13-month-old girl went viral on social media and the world’s most expensive injection shattered what millions of people had hoped for in a single stroke.
Vedika’s father Saurabh Shinde told The Indian Express that ‘Last evening Vedika was playing by herself when suddenly she started having trouble breathing. We immediately took him to a nearby hospital. When his condition was stable at Bhosari Hospital, we took him to Deenanath Mangeshkar Hospital. She was immediately given ventilator support. Doctors tried their best to save him, but unfortunately it did not happen. She died in the evening.
Vedika 16 Crore Injection.
According to Vedika’s father, who lives in Bhosari area of Pipri-Chinchwad in Maharashtra, “When Vedika was given the injection last month, her condition was improving. She was always lying on the bed before giving the injection. But, after the injection, she started moving. Last month we also celebrated his birthday. The doctors had said that we will have to take more care of her for three months, after that her condition will improve a lot. He told that Rs 16 crore was raised through several platforms. In the Lok Sabha, MP Amol Khole had appealed to the government to waive the import duty for getting injections from America. Actor John Abraham also appealed for donations. Family members said that there was support from all over the world, ‘…but fate had something else in store for her.’
According to Vedika’s father, ‘When Vedika was four months old, she could not handle her neck. She would fall to the side and could not keep herself upright. When taken to the doctor, he described spinal muscular atrophy, which causes muscle loss. Then he told about Zolgensma which is the most expensive medicine in the world, which is worth Rs 17 crore. Doctors had said that this injection could save Vedika’s life. But, even after the injection, that news came, which hurt crores of people of the world.
what is spinal muscular atrophy?.
Genetic Spinal Muscular Atrophy is a disease caused by a deficiency of the SMA-1 gene in the body. This weakens the muscles of the child. There is a shortage of water in the body. There is difficulty in breastfeeding and in breathing. In this disease, the child gradually becomes completely inactive and he dies. In Britain, about 60 children get this disease every year, but in Britain its medicine or injection is not ready.
16 cr injection.
The name of the injection used for its treatment is Zolgensma. These are imported from the US, Germany and Japan in the UK. Giving a single dose of this injection to a child suffering from this disease is sufficient.
This injection works as a gene therapy. Gene therapy is a major discovery in the medical world. Overall this injection is rare and extremely expensive.